Privacy Policy

Huntington Medical Research Institutes Online Privacy Policy
Our online privacy policy, described below, applies to the information that we collect through our Sites. For more information on how we use and disclose health information subject to HIPAA, please review our HIPAA Notice of Privacy Practices, available at

Effective: December 7, 2015 

Huntington Medical Research Institutes (“HMRI,” “we,” “us,” “our”) is committed to letting you know how we will collect and use your personal information.  This Privacy Policy is applicable to information collected through HMRI’s website, (including any versions optimized for viewing on a wireless or tablet device) and all other applications, interactive features, and online services and communications that link to this Privacy Policy (collectively, the “Sites”), however accessed and/or used, that are operated by us, made available by us, or produced and maintained by HMRI.  We have established this Privacy Policy to let you know the kinds of information we may gather during your visit to the Sites, why we gather your information, how we use this information, under what circumstances we may disclose your information, and how you can manage your information.

This Privacy Policy does not apply to information that you may submit to us offline, or to third party websites and applications to which we may link or who may link to us. We are not responsible for the actions and privacy policies of third party websites and applications. This Privacy Policy does not apply to patient information protected under HIPAA.

By visiting or submitting information through the Sites, you are accepting the practices described in this Privacy Policy.  If you do not agree to the terms of this Privacy Policy, please do not use the Sites.  We reserve the right to modify or amend the terms of this Privacy Policy from time to time without notice. Your continued use of the Sites following the posting of changes will mean you accept those changes. 

If you have any questions about this Privacy Policy or do not see your concerns addressed here, you should contact us by email at

What Information About Me Is Collected and Stored?

We collect two basic types of information from you in conjunction with your use of the Sites: personally identifiable information and non-personally identifiable information. Personally identifiable information is any information that can individually identify you and includes information such as your name, e-mail address, telephone number, and postal address. Non-personally identifiable information includes information that does not personally identify you, but it may be linkable to you.  Examples of non-personally identifiable information include device identifiers, IP addresses, demographic information and general location information.  If non-personally identifiable information is directly linked to personally identifiable information, it will be considered personally identifiable information while it is linked. Aggregate and de-identified information is not considered personally identifiable information.

Personally Identifiable Information

As a general matter, you can browse the Sites without submitting your personally identifiable information to us.  However, there are a number of circumstances in which you may supply us with your personally identifiable information, such as when you:

  • Sign up to receive e-mail newsletters or email alerts from us;
  • Submit a donation commitment;
  • Participate on social media accounts involving HMRI; and
  • Knowingly volunteer personally identifiable information anywhere on the Sites.

Collection of Personally Identifiable Information From or Through Social Media Sites

When you interact with any HMRI page or account on a social media platform, such as Facebook, Twitter, or LinkedIn, we may collect the personally identifiable information that you make available to us on that page or account including your account ID or “handle.” If you chose to access our Sites through a social media site, HMRI and that service may share certain information about you and your activities.  With your permission, we also may share information about your activities, including what you view on the Sites, with that social network and its users.

Non-Personally Identifiable Information

As stated above, when you interact with the Sites, we may collect non-personally identifiable information, that is information that does not individually identify you. Generally, we collect and store the following categories of non-personally identifiable information:

  • Demographic data such as age, gender, and five digit zip code;
  • Device information about your computer, mobile device, or other device that you use to access the Sites, such as IP address, unique device identifiers, browser type, browser language, and other transactional information;
  • Usage information about your use of the Sites, such as a history of the pages you view or other information used to customize the Sites;
  • Additional “traffic data” such as time of access, date of access, software crash reports, session identification number, access times, and referring website addresses; and
  • Aggregate data regarding the use of the Sites.

Use of Cookies

Like many websites, we use “cookies”, which are small text files that are stored on your computer or equipment when you visit certain online pages that record your preferences and actions. We use cookies to track use of our Sites and online services. We may also use cookies to monitor traffic, improve the Sites and make it easier and/or relevant for your use.

Most web browsers automatically accept cookies, but, if you prefer, you can usually modify your browser setting to disable or reject cookies. If you delete your cookies or if you set your web browser to decline cookies, some features of the Sites may not work or may not work as designed.  For more information on cookies and how to disable them, you can consult the information provided by the Interactive Advertising Bureau at

The Sites also use Google Analytics, a web analytics service provided by Google, Inc. (“Google”).  Google Analytics uses cookies or other tracking technologies to help us analyze how users interact with and use the Sites, compile reports on the Sites activity, and provide other services related to Sites activity and usage.  The technologies used by Google may collect information such as your IP address, time of visit, whether you are a return visitor, and any referring website.  The Sites do not use Google Analytics to gather any personally identifiable information.  The information generated by Google Analytics will be transmitted to and stored by Google and will be subject to Google’s privacy policies.

We may partner with third party advertising companies who may utilize cookies or other technologies to provide advertisements about goods and services that may be of interest to you. These third parties may use cookies alone or in conjunction or other tracking technologies to collect information about you when you use the Sites.  They may use persistent identifiers to collect information about your online activities over time and across different websites and other online services beyond the Sites, as well as across different devices.  They may use this information to provide you with interest-based advertising or other targeted content about goods or services that are unrelated to HMRI. .    Such third parties may, with sufficient data from other sources, be able to personally identify you, unknown to us. To learn more about the third-party collection and use of your information and the choices you have, please visit the Network Advertising Initiative by clicking and/or Digital Advertising Alliance by clicking

Some content or applications on the Sites are served by unaffiliated third parties. We do not control these third parties’ tracking technologies or how they may be used.  If you have any questions about third party content or applications, or about an advertiser’s privacy practices, you should contact such party directly.

Your browser or device may include “Do Not Track” functionality.  Our information collection and disclosure practices and the choices we provide, will continue to operate as described in this Privacy Policy, whether or not a Do Not Track signal is received.

Children’s Information

The Sites are not intended for children under 13 years of age.  Unless otherwise disclosed during collection and with parent or guardian consent, HMRI does not knowingly collect personal information from children under 13 years of age. If you are under 13 years of age, do not provide personal information to HMRI. If HMRI discovers that a child under the age of 13 has provided HMRI with personal information and we do not have parental consent, HMRI will promptly delete that child’s information from the Sites.

How Do We Use Your Information?

We use the information we learn from you to help us personalize and continually improve your experience on the Sites.  We may use your personally and non-personally identifiable information in the following ways:

General Uses

We may use the information to:

  • Provide you with the content, products and services you request,
  • Communicate with you about your account or transactions with us, including donation commitments, and send you information about features and enhancements on or to our Sites,
  • Communicate with you about changes to our policies,
  • Communicate with you about your comment to a story or topic,
  • Send you newsletters or other educational materials,
  • Send you offers, promotions, or other communications about our products and services, including our research activity, or fundraising or promotional events, including services, events, or research that we collaborate or co-offer with a third party,
  • Detect, investigate, and prevent activities that may violate our policies or be illegal,
  • Optimize or improve our products, services and operations, or
  • Perform statistical, demographic, and marketing analyses of users of the Sites and their viewing patterns.

Combination of Your Information

We may combine information gathered from multiple portions of the Sites into a single record.  We may also use and/or combine information that we collect offline or that we collect or receive from third party sources to enhance, expand, and check the accuracy of our records. If we combine information collected from the Sites with information subject to additional restrictions on use or disclosure, such as information protected under the Health Insurance Portability and Accountability Act, as amended, including implementing regulations (collectively, “HIPAA”), we will apply the more restrictive rules to the combined information.

Who Do We Provide Your Information To?

Non-personally identifiable information collected on the Sites may be disclosed in any manner that we deem appropriate.  Among other things, we will disclose non-personally identifiable information to third parties to help us determine how people use parts of the Sites and who our users are so we can improve our Sites.  We will also disclose non-personally identifiable information to our partners and other third parties about how our users collectively use the Sites.

We may disclose your personally identifiable information collected on the Sites to our service providers, affiliates, and other third parties as described below, with your consent, and as described elsewhere in this Privacy Policy.

Third-Party Service Providers

We have third party service providers, agents, affiliates and partners that may perform functions on our behalf, including, but not limited to, payment processing, hosting, content syndication, content management tools, social media integration, marketing, analytics, customer service, and fraud protection.  These entities may have access to personally identifiable information if needed to perform their functions.  If such access is required, the third parties will be contractually obligated to maintain the confidentiality and security of that personally identifiable information.


We may change our ownership or corporate organization while providing the Sites.  We may also sell certain assets associated with the Sites.  In such event, we may transfer some or all of your information to an entity acquiring all or part of our assets or to another entity with which we have merged.  Under these circumstances, we would request the acquiring party to follow the practices described in this Privacy Policy.  Nevertheless, we cannot promise that an acquiring party or the merged entity will have the same privacy practices or treat your information the same as described in this Privacy Policy.

Law Enforcement, Legal Process, and Emergency Situations

We may use or disclose personally identifiable information if required to do so by law or in the good-faith belief that such action is necessary to (a) conform to applicable law or comply with legal process served on us or the Sites; (b) protect and defend our rights or property, the Sites, or our users, and (c) act to protect the personal safety of us, our agents, service providers, affiliates, and partners, users of the Sites, or the public.

What Steps Are Taken to Keep Personally Identifiable Information Secure?

We are concerned about ensuring the security of your personally identifiable information and take certain security measures to protect such information.  Please understand, however, that while we try our best to safeguard your personally identifiable information once we receive it, no transmission of data over the Internet or any other public network can be guaranteed to be 100% secure.

You need to help protect the privacy of your own information. You must take precautions to protect the security of any personally identifiable information that you may transmit over any public or untrusted network by using encryption and other techniques to prevent unauthorized persons from intercepting or receiving any of your personally identifiable information. You are responsible for the security of your information when using unencrypted, open access, public or otherwise unsecured networks.

Notice to Non-US Users

The Sites are published in the United States and the personally identifiable information of users of our Sites is located in the United States. If you are located outside the United States, you should be aware that your personally identifiable information will be transferred to the United States, the laws of which may be deemed by your country to have inadequate data protection. If you voluntarily submit personally identifiable information to us, you thereby consent to the use of such information as provided in this Privacy Policy and to the transfer of that information to, and/or storage of that information in, the United States.

Accessing and Correcting Your Information

You may send an email to to request the correction or deletion any personally identifiable information that you have provided to us.  You will not be permitted to examine the personally identifiable information of any other person or entity and may be required to provide us with personally identifiable information to verify your identity prior to accessing any records containing information about you.  We may not accommodate a request to change or delete personally identifiable information if we believe doing so would violate any law or legal requirement, or cause the information to be incorrect. Deleting your personally identifiable information may cause us to no longer be able to provide you with requested services or products, such as our newsletter, or to process donation commitments.